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S Jensen
03-08-2007, 09:10 PM
I go in tomorrow to have an MRI. The eye doctor found something unusual in my eye. It is either a brain tumor or, much more likely, pseudotumor cerebri. With pseudotumor cerebri you have a build up of cerebral fluid. You can read about it at this site (http://www.pseudotumorcerebri.com/) if you want. Most of what I've read says it attacks very obese women of childbearing years most of the time. I'm not really obese, I'm certainly overly pudgy, have weight to lose for sure, but not really obese. It can attack the obnoxiously scrawny and men and teens too though too. Anyhoo...it mimics a brain tumor, hence the MRI. After the MRI shows that there isn't a brain tumor (there won't be one, I'm not worried) I have to have a lumbar puncture.

To be honest, what worries me most is that it can really do things to your vision, even causing blindness. Headaches, dizziness, brain tumor...all that doesn't scare me and I can handle it (I have the headaches and dizziness already) the thought of not being able to do photography or see my kids grow up makes me very nervous.

So, MRI tomorrow morning, lumbar puncture when the results are in from that and another vision test on Tuesday.

Prayer would be appreciated, thank you.

Sara

Mike Dolny
03-08-2007, 09:36 PM
Sara, Thank you for your support, now you have mine. My first prayer for you has been said, and more are to follow. Good luck, and God bless.

Kelly Story
03-08-2007, 10:13 PM
Sara,
You are in my thoughts and prayers. Keep your chin up.

Kelly

Jessi Hill
03-09-2007, 12:10 AM
So scary- My prayers are with you.

Jordan
03-09-2007, 01:07 AM
I am sorry to hear of your MRI. I know it is scary. I just had an EEG and MRI on Tuesday and waiting for results (for headaches and seizures - long story). I hope all goes well. Thinking of you and you are in my prayers.
Kim

Tasha Nicholls
03-09-2007, 03:32 AM
Sara and Jordan,

I'm praying for both of you and hope that you have good MRI results. Please let us know.

marylouise
03-09-2007, 10:28 AM
Sara and Jordan you're in my thoughts and prayers.
Mary Louise

S Jensen
03-09-2007, 12:21 PM
Kim, I'm sorry you are going through that! Back before I had my oldest I suddenly developed what they thought was a seizure disorder. I had the abnormal brain waves and such, but what I had was constant unbalancing dizziness (had to walk holding on to the wall half the time). They thought at the time that it must have been brought on by a virus. I'm now wondering if maybe I had too much spinal fluid even back then (Nov. 28th, 1999 is the day it all started...normally I'm MISERABLE at remembering dates, but that one stays with me).

I hope that what is going on with you is simply a virus and when that goes away you'll be fine. Please keep us posted though. I never had the full blown seizures, but have experience with watching people have them and I can only imagine how scary they are for the person going through one.

Sara

S Jensen
03-09-2007, 12:25 PM
Thank you everyone. I'll be sure to let you know what they say about the MRI. I'm certain it will be clear, well, I'm pretty sure that there is going to at least be a brain in there. :) Tumor-wise though I don't have any worries that there will be one. It is what comes after the MRI that worries me more. *sigh*

Thank you for your thoughts and prayers though, I appreciate it. Gotta go get ready to go now.

Sara

Tara Roberts
03-09-2007, 12:52 PM
God Bless you, I have never really prayed with my heart and soul until the day I started having contractions... Now I pray at the drop of a dime. I will pray for you and your health. Your will remain in my thoughts.

Jordan
03-09-2007, 04:33 PM
Sara..hang in there. I am thinking of you. I pray that God will comfort you through this.
Kim

B Storm
03-09-2007, 07:01 PM
Kim,

My thoughts are with you and your family!

S Jensen
03-09-2007, 10:17 PM
Well, this is starting to seem a bit unreal to me because it is so much going on that it can't actually be happening.

I took Tiernan my 3 year old in for his well check-up today. He's not technically well, wasn't for his birthday and hasn't really been since. I just figured it was now or when he's 4 so I had better take him in, runny nose and all. There are lumps below his ear that have been there a while, but now have multiplied. The doctor said there are 7 or so and the most he feels comfortable with is 3 and not in the sort of positioning that they are. He had another doctor come in and check him out too and they both agreed he needed to get some bloodwork done. So, had to take Tiernan, who has a fear and loathing of anything resembling a doctor, hold him down with the help of 2 nurses and a board that they strapped him to (yet he still managed to sit up!) and get some blood drawn to make sure he doesn't have lymphoma or leukemia. They should get the results tomorrow and he said they would let me know tomorrow.

Sara

Mike Dolny
03-09-2007, 10:29 PM
Sara,
I'm feeling for you and your family. More prayers are on their way to you and your family.

Jordan
03-09-2007, 11:09 PM
Sara - I can't imagine the range of feelings/emotions you are having right now. I hope and pray that you will feel all the prayers for your family. Thinking and praying for you.
Kim

Lindzy Foster
03-10-2007, 01:27 AM
Sara,

Im praying for you and your little guy...hoping everything turns out well...

Lindzy

Sandy "Sam" Puc'
03-10-2007, 10:26 AM
Sara,
You are in my thoughts......
Sam

Tasha Nicholls
03-11-2007, 01:43 AM
Sara.... did you hear back from the Dr. about Tiernan??? What about the MRI? Please keep us posted!

S Jensen
03-11-2007, 03:35 PM
Ok, heard back from the doctor about Tiernan's tests. Thank God they were clear. He still wants us to go to the Pediatric ENT up at OHSU though.

The wonderful news didn't lead to a quiet night though. We had to take him to the ER last night because he couldn't breathe. He has croup. For some reason, my oldest has never had it. This is the second time Tiernan has gotten it and both times he's had to go to the ER because his O2 levels start to go down when he can't breathe. They put him on a nebulizer for half an hour and gave him a shot of some steroid of some sort. He was able to sleep the rest of the night.

I'm tired.

I should hear the results of my MRI tomorrow hopefully.

Sara

Mike Dolny
03-11-2007, 05:27 PM
Good to hear, Sara. Hopefully the sun rises tomorrow with more good news.

Lindzy Foster
03-11-2007, 06:58 PM
i hope you get some rest and Tiernan is feeling better..
thinking of you,
Lindzy

Wendy Armstrong
03-12-2007, 03:44 AM
sarah, glad to hear about tiernan, but want to hear if you're ok! I'll try calling you tomorrow. (great meeting you at ppo! and thanks so so much for manning the booth!)

Tara Roberts
03-12-2007, 03:30 PM
I hope everything turns out Ok for you and your son. I look forward to your updates and will pray for your family.

Jordan
03-13-2007, 11:54 PM
Sara - How are you doing? and Tiernan?

S Jensen
03-14-2007, 03:19 AM
Tiernan is recovering well. Pretty much unless he's coughing he doesn't believe he's sick, just leaky (nose). :)

I got my MRI results today and I do not have a brain tumor thankfully. So, I have to go see a neurologist and get a lumbar puncture to determine how high the pressure on my brain is from spinal fluid.

Thank you for asking.

Sara

Jen Eagan
03-14-2007, 04:49 AM
Glad it's not a tumor (of course as I type this I hear Ahnold saying "iss not a tumah!") but a "lumbar puncture"- I don't know what that is but it sounds unpleasant for sure. Hope they can fix whatever the problem is without too much trouble.

S Jensen
03-14-2007, 12:10 PM
A lumbar puncture is like an epidural gone bad. :) They test the pressure in your spinal fluid by poking into your spinal colum and getting some of the fluid out.

For the problem they try medication but if that doesn't work they do a shunt. This is pretty rare, my doctor has 1 other patient is all and I think that is the only one he's had before. That patient had to get a shunt but is doing pretty well.

Sara

Jordan
03-15-2007, 12:24 AM
Sara I am gald to hear that it is not a tumor. I hope the doctors can help you.

My MRI came back normal so now I am guessing that my headaches are just from stress. I am still waiting to hear on the EEG for my seizures - I have had 7 grand mal seizures in my life time. I have not had a grand mal for 3 years. I have been dealing with peti mal seizures while I was pregnant with Jordan and I thought that they were gone but then I have had a few since I had her in Nov. 2006. I am hoping to chalk it up to my seizure med level low with being pregnant and the stress we are going through. I haven't had a peti mal since the Dr. changed my dosage a couple weeks ago until today. I guess I had one at work today - co-workers noticed it - I don't know that it happens but after it happens I feel like I need to throw up. Hopefully I can find out some answers at my appointment with the Dr. March 29th.