New here! Will deliver Trisomy 18 angel soon

[amora]

Hello everyone! I'm new here. I must say I have enjoyed reading through stories here and the photography is amazing. I'm 31 weeks pregnant and have known since approx 20 weeks that our angel has Trisomy 18. My husband and I have done fairly well with planning her birth, arrangements, etc, but as the time comes closer I find myself becoming more withdrawn. I wish my baby could stay in me forever if that's the only way she can live.

The stories here are amazing! Our photographer we found here has truly been a blessing!

[marylouise]

Anma, I am so sorry. I will keep you in my prayers.
Hugs

[Vicki]

Amora ,

I wish that you could keep your baby in you forever too if that would keep her alive . . . I cannot imagine what you are going through but I know that there are so many others here that will be there for you as they too have travelled down this path . . .
It's wonderful that you connected with a photographer that you like and trust. I hope you will share those photos with us so that we too can see your beautiful little angel.
My prayers to you and your family . . .

Vicki

[KEA's Mom]

Amora,
I will be praying for your family. Take care of yourself.

[JenniferBrown]

Anma,

I'm so sorry for what you are going through right now. I will keep you in my prayers.

Sincerely,

[erinm]

Hi, first I want to say WELCOME. But I am sorry you have reason to join our club. But we are a nice club. Just no free t-shirt with membership here:D

I am a t-18 mama too. My son Tyler passed during birth. He is my angel boy. you can read his story, view his video, or read my birth plan here:
http://mysite.verizon.net/res92xvm/ (http://mysite.verizon.net/res92xvm/)


I am guessing you have found the t-18 forums www.trisomy18support.org (http://www.trisomy18support.org)
they are great for info.

Feel free to ask me any questions about the condition as I was a bit of a research-aholic about t-18 when I was pregnant. I prepared for all medical issues. As you can read in Tyler's birth plan.

unfortunately, you cant prepare your heart. That is the hardest part.

I am happy you found NILMDTS. our photographer Jen Eagan was the biggest blessing amidst this saddness. She gave me something no one could have; she gave me my memories of Tyler back. She crammed a lifetime into one photo session.

[Margaret Hatcher]

Amora:
I am so sorry that you are going through this, but you are not alone, we are here, we will be praying for you. I am so glad that you have found a photographer that is going to create your memories for you. Please keep us posted and we will continue to pray for you and your family. May God continue to give you strength all the days of your life.

[Ashley Campbell]

Amora,

I am so happy you found a wonderful photographer. Enjoy every minute you have with her.

You have my thoughts and prayers!

*hugs*

Ashley

[amora]

Hi, first I want to say WELCOME. But I am sorry you have reason to join our club. But we are a nice club. Just no free t-shirt with membership here:D

I am a t-18 mama too. My son Tyler passed during birth. He is my angel boy. you can read his story, view his video, or read my birth plan here:
http://mysite.verizon.net/res92xvm/ (http://mysite.verizon.net/res92xvm/)


I am guessing you have found the t-18 forums www.trisomy18support.org (http://www.trisomy18support.org)
they are great for info.

Feel free to ask me any questions about the condition as I was a bit of a research-aholic about t-18 when I was pregnant. I prepared for all medical issues. As you can read in Tyler's birth plan.

unfortunately, you cant prepare your heart. That is the hardest part.

I am happy you found NILMDTS. our photographer Jen Eagan was the biggest blessing amidst this saddness. She gave me something no one could have; she gave me my memories of Tyler back. She crammed a lifetime into one photo session.

I've been seeing a gal here since I was about 25 weeks and she's been great. I've been doing a lot of research on T-18 and from the medical standpoint I am prepared, but not prepared to say good-bye to my baby. We also have a birth plan written up. Our baby will never leave our room and we have arranged that I have the room right outside the OR and my family is to wait in there instead of the waiting room. I want all of my family to be able to meet her before she get her wings.

[motherofthree]

Anma,

I am so sorry that you are going though this, but feel heartened by your outlook; you are preparing to love and parent your sweet angel in the time that you have. What beauty and strength there is in that!!

Do you have a delivery date set yet? Have you chosen a name for your sweetheart?

I am so glad that you have connected with a photographer. I know that the photographs I have from NILMDTS are the best gift I have ever received, as well as the best tool I have had for my grief and are now one of my most prized possessions.

I will be praying for you and your sweetheart, that you get the sweet gift of time with your angel - more time than anyone expects. Please keep us updated.

[amora]

Just letting everyone we lost our baby May 9. I was 31 weeks. We got to share a wondering 180 minutes with her.

[carissa13]

That is wonderful that you had time with your daughter but I am sad for you that she is now it Heaven.
You and your family are in my thoughts and prayers

[motherofthree]

Thank you for letting us know. I am so glad that you got some time with your sweetheart. I would love to see a picture when you are strong enough to share her with us. You are in my thoughts and prayers!

[Brooke]

I'm so sorry to hear that your daughter has received her angel wings. Please know that we are all here for you and your family during this very difficult time.

Love,

Brooke-Mommy to Carter, Ethan, Caden, &

[marylouise]

Amora, I so sorry you lost your daughter. Sending prayers and hugs.

[linda]

Amora, thinking of you and praying for you! I hope your day was filled with some beauty in the midst of all your pain. You and your family are in my prayers.

[George]

Amora,

My heart is breaking for you. My "Helping Bereaved Parents" document has some suggestions you may find useful.

I wish there was something I could say or do to spare you the pain of losing a child.

[amburke2]

Amora,
I'm so glad you got to meet your beautiful baby girl before she went to heaven. How wonderful that she spent her whole life living in love.

I'm praying for you and your family as you walk this path. We can't take the pain away, but we can be companions for the journey.

[Kathy Schneider]

Amora,
I am sorry about the loss of your daughter. Know you are in all of our thoughts and prayers as you travel the road you are on. Also know that she has lots of angel playmates in heaven to have playdates with! By the way, what did you name her? Hugs.

[Estrella]

Amora, my heart broke for you as I read your thread....I am so sorry! Praying for you and your family...(((BIG HUGS)))

[Marcus Momma]

I am so sorry. I will be praying for you and your family that you find some kind of peace. I know how it feels to want to keep your baby in you so they will be safe and alive. *Hugs*

[KEA's Mom]

Amora,
I am deeply saddened by your loss but I'm so glad that you were given some time with her. I will be praying for all of you.
Blessings,

[amora]

Amora,
I am sorry about the loss of your daughter. Know you are in all of our thoughts and prayers as you travel the road you are on. Also know that she has lots of angel playmates in heaven to have playdates with! By the way, what did you name her? Hugs.

We named her Ayesha Lynn. She was/is truly awesome. She was born at almost 31 weeks. We had decided that we would not use any extra measures. We did not want our daughter to have a life of tubes and needle pokes. We did give her oxygen to help her along. The neonatologist was amazed how well she did breathe on her own and how she didn't look like a premie at all. She was just perfect! She held on for 180 minutes.

We've learned a lot through all this. No longer am I the mother that will say "wait a minute" to my other 2 kids. I don't care if the floor needs vacuumed or if there's dishes in the sink. I've learned to cherish every minute with the ones I love because they won't always be here.

[LiseB]

Thank you for sharing your story with us! I hug my kids a little longer and try to keep that very same perspective you are talking about? Floors? Dishes? Compared with time spent with my family? Not a close call!

My thoughts and prayers go out to you and your family.

[Lindzy Foster]

Amora,
Im so sorry for the loss of your precious Ayesha Lynn but so very glad you got some time with her.......you will be in my thoughts and prayers.

[Madge]

I'm sorry for your loss. I am over 35 weeks now, and still waiting to see what happens with our T-18 baby.

[Tammy]

Amora~ thank you for sharing your story~ please know we are all here to lend our shoulders to you, share our tears with you, and help you along the way when you need us. (hugs)