Keiran's story

[Jamie Little]

Hi. My name is Jamie and my husband is Trey and we lost our little girl on 1-26-06.

We were at a perinatologist appointment getting a routine ultrasound when they first found a problem with Keiran. I have lupus and the perinatologist visit was to just discuss my medication. I never expected anything bad to happen. They found the cystic hygroma when we were only 13 weeks along. We felt like the world had been moved out from underneath us. They did a CVS the next day and the test results confirmed a genetic abnormality a week later. Our first child and precious little girl had trisomy 13.

Much of the next few months are a blur. The doctors said that she would not get bigger than a pound, she would die well before full-term and there would be many many abnormalities. All we could do was pray and wait. Every kick was like a little miracle and every ultrasound gave us more hope.

Our sweet little girl was born still on January 26, 2006 weighing 4 pounds 12 oz at full term.

We were fortunate enough to have Jennifer Turner (an NILMDTS affiliated photographer)there to photograph our little family. What an amazing service. I get to look at Keiran whenever I want. Her pictures are on the other page. (http://www.nowilaymedowntosleep.org/index.cfm?PAGE_ID=533&EXPAND=533)

There is so much more, but reliving it all right now is difficult. It is still so fresh, so that is the super-duper mega-condensed version.

I hope to get to know you all better. :)

[Kirk Kief]

Jaime,
I am so proud of you to join us here. The two beautiful things about this forum is the support that you will find, here, and the fact that there are no time limits. You tell your story only as much as you feel comfortable with, and only within your timelimits.
We are here to listen, offer you our prayers, lend an ear whenever you just want to talk, and offer a shoulder whenever you feel you need one.
I have known Jennifer Turner for several years. You have made very special friends with someone who is very special, and a phenonemally talented individual. I know how prescious your images are, and how comforting they are to have Keiran near you whenever you need her.
If there is ever anything that any of us can do, do not hesitate for a moment to ask.

[A&JPearce]

I am so sorry to hear of the loss of your daughter. I was looking at the amazing photos that NILMDTS took, she is beautiful, and so peaceful. Thank you for sharing your story.

[Cheryl Haggard]

Jaime,
I am glad that you found us, but also saddened at the fact that you are here. Thank you for sharing your beautiful baby girl, Keiran with all of us here. The images Jennifer did of her, are simply stunning. I am so glad that you have these. I truly believe that having these beautiful images of your daughter will help you so much in the time to come. Please feel free to post as little or as much as you want. Take your time. This is a wonderful group of people. A wonderful supportive group of people.
Many Blessings,
Cheryl

[Tammy]

Jamie and Trey~
I watched little Keiran's slideshow and cried through the whole thing... twice. What a sweet and beautiful little girl.
Thank you for sharing her with us~ we know how difficult it is to relive those moments that should have been filled with excitement and joy. But you took the first big step by sharing Keiran's story and precious images with us. That in itself speaks volumes.
Please know, we are here for you to offer our encouragement and support. As Cheryl mentioned, share what you want with us in your own time. Chances are, things you are going through and the emotions you have, at some point we have experienced those same things. We will get through those difficult moments together.

[Jennifer Turner]

Hi Jamie, just checking in and saw your post. Welcome! I was So honored to be able to take those images of sweet Keiran, you all touched my life and changed me in a way I can not describe. I look at Keiran's pictures often and wonder how you are. You are an amazing woman with amazing strength, even when you feel your weakest. I watched you tenderly care for Keiran and all of those around you that evening and it showed what an amazing mom you are. Trey's kindness and strength touched both Justin & I, too. You guys are the best and I look forward to knowing you thru the years~

[Martin Comiskey]

Jamie,

Thank you for sharing Keiran with us and know that we are praying for you and your husband.
Martin

[Brooke]

Jaime,

I'm so sorry first off for the loss of your precious daughter. I too have just lost a daugther almost two months ago now. You are the first person here at this forum that had a daughter who unfortunatley was diagnosised with a Cystic Hygroma. My daugther, Emma, had that as well. Along with that she had a chromosone defect called Turners's Syndrome. The Fetal Hydrops diagnosis is what ultimately ended her short life. Losing a daugther is the hardest thing that I have ever done. I'm sure that it is for you also. Nice to read your story. Her pictures are so beautiful. Thank for sharing.

Love,

Brooke (Emma's Mommy)
Sister to Carter-4 & Ethan- 19 months

[Scott Hays]

Jamie and Trey,
Thank you for sharing your precious daughter with us. I can only tell you from experience that this forum is such a wonderful place for support. After these many years after having lost my Lindsey, these wonderful people have always been there for me, and I know they will be there for the two of you as well. Have Trey come in and join and read our Father's Room. Ok, you're welcome there too.
Again, welcome to the forum. God bless your family, I'll be thinking of you.

Scott and family

[Jamie Little]

Thank you everyone!

I will be sure to tell Trey about the father's area. After Keiran died he searched the internet for support and found hardly anything for dads. Now that we are approaching her first birthday I am sure he will be glad of some place to go and speak with other dads.

Thank you! :)

[careyayn22]

Thank you for sharing your story. Keiran was a beautiful little girl. I am so sorry.