Hello

[bernie7]

Just joined this forum, i found out about you as i have been a member of trisomy 18 support forum for over 2 years now.

I am a 40 year old mam from Cumbria, England, i am married and my husband is 42yrs old, we have seven children, six with us on earth and our Angel Joshua Malachi who died June 2006 at nearly 5 weeks old from Trisomy 18.

We do not have anything like NILMDTS in the UK and i'm sure there would be many families who would sadly benefit from a service like yours. We were lucky in the respect that we had time with our son ( be it not long enough:( ) and have a lot of photographs to cherish of him.

It would be lovely to hear from anyone else who has been affected by this devasting conditon.

Thanks for reading.

Bernie

[ConnieG]

Just want to say WELCOME. This is a great forum and the people are wonderful. I have four children in Heaven and one 2 yr. old on earth. My children were all born early as I develope pre-eclampsia. Our last one, Kaden died in April of this year at 5 weeks b/c he was born at 24 weeks and was just too early. He is our last as I almost died myself. My heart goes out to you and your husband. I hope to get to know you well through this site. I do not know what trisomy 18 is, but have seen it posted quite often from other parents on this site, I am sure you will find great support.

[gtownherd]

I also had a child with trisomy 18, she was born 6/23/08 and passed 4 days later on my 46th birthday. I have 4 other children, ages 14, 18, 21 and 25. This has been a devastating loss for my husband and I. We were not given much hope of having a live birth. We were so happy when we were able to bring her home for 2 days. She passed peacfully in her daddy's arms, with the rest of us around her.

[gtownherd]

Trisomy 18 for those who are not aware, it is 3 chromazones on the 18th instead of two. This condition is not compatable with life, some babies live
a little longer than others, but most die before birth or shortly after

[bernie7]

I am so sorry you have also had to suffer this awful tragedy in your family. When Joshua was diagnosed prenatally, we met with a awful paediatrician who kept telling us how our son was 'incompatiable with life' i hate that term as i feel it shouldn't be used, our son lived nearly 5 weeks surely if he was not mean't to live, none of these babies would survive at all ? Our little boys life was as important as all our living children and we had to give him the same chance as they got.

bernie

[Marcus Momma]

Just wanna say welcome and I am sorry for your loss.

[motherofthree]

I am so very sorry for your loss. My brother had T-18. They are very special babies. Did you get any pics of your own. Would love to meet your angel!