More Prayers needed

[Hailey and Logans Daddy]

Baby Janes is sick too. They found a pretty large cystic Hygroma (spelling) and they say it is normally linked to genetic disorders such as Trisomy or potters syndrome. However since nothing is known about Campomelic dysplasia they think it may be an early indicator of that which is what HAiley had. They are already telling us to look at options for the next pregnancy and to know that the odds are not in our favor. It would take a miracle for the baby to be ok. Now Jenny and I have some serious choices to make. Any prayers would be appreciated.

[motherofthree]

I am so sorry to hear your news. You must be terrified and heartbroken just thinking of these possiblities. I will of course be praying for you all. How far along is Baby Janes? Do they have to wait to find out anything conclusive? I am so sorry to hear this; I've been hoping and praying for all of our babies to be safe and healthy. Please, please keep us updated. Hugs,

Beth

[Hailey and Logans Daddy]

Baby Janes is 11 weeks and 6 days. They can do a CVS test and then it takes a week for the results but insurance doesnt pay for it :( and we have to scramble to find the money for that. When it rains it pours sometimes. Im hoping there is a light somewhere in this tunnel.

[Madge]

My prayers are with you.

[CrystalW]

I'm so so so sorry. (((BIGHUGS))) I am still praying for a miracle for you. I cannot believe your insurance will not pay for CVS test?? How odd. What if your OB wrote a letter stating it is medically necessary?

[Marcus Momma]

I am so sorry I will be praying along with everyone else.

[MrsSpencer]

so sorry I'll be praying for you

[KEA's Mom]

I will be praying for you as well.

[motherofthree]

How terrible that your insurance won't cover this diagnostic test. I'll pray now that you find those means, and that everything is OK with the test.

[Rayna']

that breaks my heart! I pray for a miracle!

[Cathy]

I am so sorry that you guys have to go thru this again
I hope that you are both ok
I will be praying for you
Cathy

[Katherine]

Im so sorry to hear this, you guys are in my thoughts and prayers

[Kerry]

I will be praying for you and your family . So sorry insurance are dirty rats and won't cover the necessary things needed in pregnancy. Might be able to call and give them your circumstances and what had happened in prior pregnancy and maybe they will reconsider. I will check with my uncle that is a placenta pathologist and see if he has any different studies on it that could be helpful. We are all thinking of you...

Kerry
Mother of Olivia,Sarah,Lane and Heavenly Angel Mallory

[Jayme]

I am so sorry. I pray that you can get the testing that you need and that things come back ok.

[marybethsmomma]

Praying something can be done!!!!

[Brooke]

Haily's Dad,

I'm so terribly sorry to hear about your sad news. I just want you to know that our daughter Emma was diagnosis at 20 wks with having a Cystic hygroma. Unfortunatley for her that was not her only issue. They also detected Fetal Hydrops during the US and this was her fatal diagnosis. Also we did do a amnio and they then found that she had Turner's Syndrome which is a genetic defect. So the info that you received from the MD about Cyctic Hygroma's is pretty acurate, however, we can all still pray for a mircle!!! I hope and pray that they are wrong and mis-diagnosed your little baby. Hang inthere and good luck to you, your baby, and wife.

Brooke

[anr0014]

My husband Chris and I are just sitting here reading your post and are absolutely heartbroken for you and your family. You have been so supportive to our family and I hope to be there for you also. If you need anything, please do not hestitate. Our family's stories are so similar being that Hailey and Jake's conditions were both genetic dysplasias and I have prayed for a beautiful outcome for you all. This is just not fair and it breaks my heart...

Hugs to you, your wife and little one...

[Hailey's Mommy]

Thank you all so much for your kind words and prayers, it means a lot to the three of us!! I am so scared and I wish there was something i could do to fix it. I did not want to go through this again..How could it happen again? We knew it was a possibility, but i am still in shock. I just knew the second that doctor looked at me with that look..you all know what im talking about...he didnt even have to say anything. I am heartbroken and dont know that i can make it through this again. Why us? why when we want this sooo bad? I just dont understand

[Marcus Momma]

And Again I am sorry and we are all here for all of you. I am still praying for you. I am scared to death something is going to go wrong with this baby like it did Marcus. I am hoping changing hospitals will help and make things perfect. Know that you are in our prayers though.

[Kerry]

Hailey's Mommy-
I sent a private message to Hailey's daddy today. I have some information that might be helpful that he was talking about earlier. My uncle Scott is placenta pathologist and gave some info to help out. Didn't want to have public in case .
If you need any other info please email and I will be glad to help where I can.

Kerry
Mother of Olivia,Sarah,Lane and Heavenly Angel Mallory

[Hailey and Logans Daddy]

Kerry, thank you so much for the information. I forward the message to Jenny. You may have an e-mail here as soon as we get together and talk more. Thank you soo much it means a lot to our family to have a support network to help us in this time of need.

[Estrella]

My prayers are with you...
My arms are wrapping you in (((HUGS)))
I am so sorry you are going through this...
Take care, and please let us know if there is anything we can do.

[Lyssa Sauer]

This is to both of you. Yet again my heart is braking for you both. Knowing that feeling of wanting a child so bad I cant imagine what it feels like to have to once again feel this pain that none of us wish we knew the pain of. Sending my prayer positive thoughts and hoping just this once GOD grant one of us (you) that much needed mircle. Hugs to both of you...Lyssa

[Andi]

My good thoughts, prayers, well wishes, hopes, and hugs are all being sent your way!

http://tac.families.com/ezb/1154543.png (http://tickers.families.com)

[Lindzy Foster]

You and Jenny and baby Janes are in my thoughts and prayers, im so sorry that you are feeling this pain again....we will all be praying for a miracle for this little one!

[Lacey Canaday]

my prayers are with your family and little baby Janes.

[Tammy]

Please know my thoughts and prayers are with you guys~ I wish there were some magical words I could say to alleviate your fears and pain~ Not sure this will help, but have you considered turning to your church or community for financial assistance? If you can get your family involved with putting together a benefit dinner or something like that? Or maybe making up personal donation cards/letters to send to family friends and co-workers. Having a fall garage sale? (Ugh, too bad I don't live closer, I have a TON of stuff to get rid of that I would gladly donate and my dh would be so happy!! lol) Just some ideas to think about to gain the finances for this much needed test. You may be suprised at the resonse~never hurts to ask, on the other hand, it is a difficult thing to do. Medical insurance in this country is a sad, sad thing, there is no doubt about it.

[Hailey's Mommy]

Well we had the CVS test done last tuesday and they have already gotten back some preliminary results, it is not trisomy 13, 18 or 21...those came back negative now we are just waiting on the results to come back from Johns Hopkins, which they said will take 2 weeks, they are testing for any chromosome issues and for Campomelic Dysplasia (which is what Hailey had) so now we just wait and hope that these results come back negative. Just thought that I would give an update. We also found out that this one is a little boy!!! I hope he will be ok and this nightmare that seems oh so familar will end.

[Rayna']

Thank you so much for updating us! I've been worried about you.

[MrsSpencer]

Hope the results come back fine, will be praying for you.

[Kerry]

Glad to hear back from you and the test results are coming back quicker than I thought. Keep us posted and hope the best for the little man and your family.
My prayers are out for you and hope everything turns out ok.

Kerry
Mother of Olivia,Sarah,Lane and Heavenly Angel Mallory

[motherofthree]

I'm glad to hear that so far tests are negative for chromosmal abnomalities. I pray that the good news continues to roll on in... Thank you so much for updating us; I have been thinking of you every day and praying for your little baby. (And how exciting to find out it's a boy so early - have you named him yet?).

Beth

[anr0014]

I have been thinking about you both so much and wishing for the best. We will continue to send good thoughts your way...

[Valerie'sMomma]

I am happy the test results are coming back negative on your son. Hopefully the good news will keep coming in. Praying for you and your family.

[Jayme]

I am glad that the news so far is good! I have been thinking about you and wondering how things were going. I pray that you will continue to get good news about your little boy!

[Hailey's Mommy]

well we are still waiting, but we have named him his name is going to be John Logan Janes, John is a family name that goes back many generations and then i love the name Logan. We will call him Logan, b/c it might get confusing with 2 johns in the house...Thank you all so much for the much needed support!!!!!

[motherofthree]

What a perfect name! It sounds so manly and strong. Thanks for telling us! Now I can add his name to my prayers.

Beth

[Marcus Momma]

I love the name choice also. My son josh is named after my brother and it gets confusing when they are both at the same place we have to say big josh and baby josh.

[Lacey Canaday]

That is a great name.

[KEA's Mom]

What a beautiful and strong name. I'll be hoping and praying for all of you. Keep us posted, please.

[Hailey's Mommy]

Hello Everyone, well we got good news and bad news today...The good news all of the chromosones are normal, all the tests came back normal. The bad news: I was under the impression that they were sending the cvs to johns hopkins the day that we had the cvs done ( 2 weeks ago) well the nurse calls me today to tell me that they are done growing the stem cells at the lab and now at the end of this week is when they will send it to johns hopkins for the campomelic dysplasia testing. I am SOO mad it takes johns hopkins 2 weeks for the testing once they receive it, so we are looking at another 3 weeks before we know if he has campomelic or not. by then i will be 18 weeks and there are no options at that point. So here we go on another 3 weeks of **** at home, waiting. We are going to get a sonogram on friday just to see if they can tell anything about the babys anatomy and if it is growing correctly, and if they see any signs of the campomelic and we may go to the doctor that did all of haileys sonograms and get his opinion as well, but for now we are still stuck

[motherofthree]

I know it must be terrible being stuck in limbo like this - not knowing. And WEEKS of waiting...it sounds just horrible. I am so sorry. You are still in my thoughts and prayers.

[Marcus Momma]

Just know I will continue to pray for you

[Candice]

Im so sorry it is taking so long.

[Lacey Canaday]

I am sorry it is taking soo long. They sent a surfactant defencey test to john hopkins for sophia a week before she passed and i did not get the results back untill three weeks after she became an angel. They are slow,,but they are the best at what they do. I am praying for you and your new baby.

[Hailey's Mommy]

We had a sonogram yesterday and it confirmed that this baby has Campomelic Dysplasia. I never thought that we would have to go through this again, I am speechless and so mad. We have choosen to terminate the pregnancy for CD is not compatiable with life. We will not be able to have children until we can afford the IFV. I dont even know what to say

[efswsjuly17]

So sorry to hear your news, and that you are facing this time again. I know you are angry, sad, mad, and any other emotion that comes along with this. Just know that I am praying for you and your family at this time. May God give you the strength to continue to be strong.

Brandy

Mommy to 3 Earthly angels and my Heavenly angel

[Janice]

I am so sorry, my heart is breaking for your family. Your family will be in my prayers.

[anr0014]

I do not have the words to express how sorry I am to hear this news. My thoughts are with you...

[MrsSpencer]

so sorry this is happening again.

[KEA's Mom]

I, too, am so sorry and I will be praying for all of you.

[Sandy Viola]

Praying Praying and Praying some more.

[Tammy]

My heart breaks for you~ I am so sorry to learn of your news. I wish with all my heart that there was something we could do. Please take care of yourself, and know we are here. Sending you lots of love and hugs~
Tammy

[marylouise]

Jenny, I am so sorry, sending you prayers and hugs.

[motherofthree]

I cannot express how sorry I am - words are simply inadequate. My heart is just breaking for you both. What a terrible, heartbreaking decision to have to make; I will pray for your strength. I am so, so very sorry. Hugs and prayers,

Beth

[Marcus Momma]

I am so sorry

[MadiAidMak]

I will be praying for you and your family

[Kerry]

I was out of town this weekend visiting my husband's family. I came home today and noticed your email right away. I was such in shock and kept praying this time would work for you guys. All I could do was shed a tear and wonder why... I let my uncle know the one I been giving him medical info to him. He is very sorry to hear the sad news. Again I am sorry and I will be thinking of you and hope the best with the future with the IFV.

Kerry
Mother of Olivia,Sarah,Lane and Heavenly Angel Mallory

[Rayna']

I am so sorry! Mishelle and I were hoping things would go your way.

[Brooke]

I'm so so sorry also. I feel totally helpless, I wish there is something I could do or say to make you and your husband feel better and take the pain away. Hang in there and I'll be praying for you during this very difficult time.

Brooke