brokenhearted

[LukeFoster]

I lost my sweet baby boy 2 weeks and 4 days ago. He had Hypoplastic Left Heart Syndrome with Cystic Hygroma. The hygroma doubled in size in my 16th week of pregnancy. I have 2 children so I can't wallow in my sorrow. I am having trouble getting out of bed and going on like I should. Has anyone else's baby had these problems - what did you do? Thank you.

[Austin's Momma]

I'm not familiar with that heart condition, but I do know what it's like to lose a baby. I'm so sorry for your loss and hope you can find time to take care of yourself. Best wishes to you and your family!

[Marcus Momma]

I am so sorry for your loss.

[motherofthree]

I have heard about your little boy's condition, I first heard about it in a book called "Waiting With Gabriel", which was given to me when I discovered my daughter had a fatal diagnosis in my 25th week of pregnancy.

While I don't know much about the condition, I do have an older daughter (Priya) who is now 3 1/2. She was just over 2 1/2 last December 26th when Kavya was born and died. I can tell you, it is very difficult to be a mother to your older child after losing your baby. It is so hard to get up in the morning. And then you feel terrible and guilty knowing you are doing that bare minimum that you need to do. I had a hard time connecting with her too. You just want to not feel - and sometimes not feeling means not feeling any emotion. I couldn't just close off my grief and pain and all that hurt without closing myself off to love, too. The months right after Kavya's death were the hardest thing I have ever survived.

I am so very sorry for your loss. What is your baby angel's name? I would love to hear more about your sweet boy.

You have found a safe place on this forum. All of us here understand your pain, and the long road you must travel. While I am sorry for your need to be here, I am glad that you found us. I am so sorry your son was taken from you so very soon. We are here for you.

Beth

[Christine Barrack]

Mary,
I am so sorry. Know that I am thinking of you and praying for you.
I invite you to post in the Family Discussions in "My Story" and "I need a shoulder" so your post does not get overlooked here.
Blessings,
Christine

[MamaBethany]

Dearest Mary, I'm so sorry to hear about the loss of your precious boy. Our daughter also had HLHS -- it's a horrible thing. I would like to hear more about your little guy ....what is his name? You say you are having trouble going on like you should....it must be so difficult to care for the rest of your family while you are hurting so much. Please don't scold yourself for taking time to grieve. Grief is grief ....it is what it is.... and it is different for different people. I never want to "move on" from Bethany, because that would feel like abandoning her. Instead I live with my love and memories of her held near and dear all the time. It's a new normal. You are welcome here. We have all been in your shoes -- some very recently and some a long time ago. You are welcome.

[kattie05]

Im sorry for your loss. It has been 7 months since I loss London and it gets easier but it takes time.