Karla
07-04-2006, 04:44 PM
I visited a new doctor today and during the visit we discussed Cydney Paige's condition. I know that for the rest of my life I will search for answers. I am so broken up to hear from other doctors how poorly the pediatric specialist handled her case. I found out of other babies who were diagnosed with her condition and who were placed on an airplane immediately to another country for surgery, no air ambulance needed just a doctor holding the iv that administered the prostaglandins in his hands. The baby is doing great today, living a normal life. I know that the success rate of this surgery is high as high as 90-95%! Why did the specialist delay, why did she drag her feet in making the arrangements with the hospital in Jacksonville? Money was no problem, I trusted this woman with my daughter's life , I thought that if anyone knew what they were doing it would be her, and she would have had my child's best interest at heart. I do not know how to live with this, my baby could have a chance, I know that the success of the surgery would have depended on Cydney Paige's prognosis, but she should have been given a fair chance. I feel so hurt, I feel that I let down my baby, I should have done more for her when I saw them take so long. How could anyone let a child suffer when they know that something could be done. They have the means and knowledge to make it happen. I did not know any of this, I know now how to get in touch with foreign hospitals and how to access air ambulances, I had to learn the hard way, but it does not help me now. Why did she leave Cydney Paige to die? Today I may have had her. Maybe her comfort is that she saved me and family a lot of money, I wish I were dirt poor, because money did not help me when it mattered. I am so hurt and shattered, so many questions race through my mind, living each day knowing that all that could have been done for my baby was not done is a nightmare. I feel guilty being here and she is not.